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American Journal of Alzheimer's Disease and Other Dementias®
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How Do Officially Organized Services Meet the Needs of Elderly Caregivers and Their Spouses With Alzheimer's Disease?

Minna Raivio, MD

Memory Research and Treatment Centers Finland, Medical Center Hemo Oy, Lahti, Social Insurance Institution of Finland, University of Helsinki, and Clinics of General Internal Medicine and Geriatrics, Helsinki University Hospital, minna.raivio{at}phnet.Fi.

Ulla Eloniemi-Sulkava, MSN, PhD

Central Union for the Welfare of the Aged, Finland

Marja-Liisa Laakkonen, MD, PhD

Central Union for the Welfare of the Aged, Finland

Marja Saarenheimo, PhD

Central Union for the Welfare of the Aged, Finland

Minna Pietilä, PhD

Central Union for the Welfare of the Aged, Finland

Reijo Tilvis, MD, PhD

Department of Geriatrics, University of Helsinki and Unit of General Internal Medicine and Geriatrics, Helsinki University Hospital

Kaisu Pitkälä, MD, PhD

Department of General Practice and Primary Health Care, University of Helsinki and Unit of General Practice, Helsinki University Hospital Helsinki, Finland

The caregiving situation among caregivers and their spouses with Alzheimer's disease, the support and services received, the unmet needs, and the caregivers' satisfaction with the services are examined. The study included a survey of a random sample of 1943 caregivers of persons with Alzheimer's disease in Finland. Mean age of the caregivers was 78.2 years, and 35% had poor subjective health. Disabilities and behavioral symptoms were common among the spouses with Alzheimer's disease. The services most often offered were financial support (36%), technical devices (33%), physiotherapy (32%), and respite care in nursing homes (31%). Most often needed services were physiotherapy for the spouse with dementia (56%), financial support (50%), house-cleaning (41%), and home respite (40%). Only 39% of the caregivers were satisfied with the services, and 69% felt they did not have any influence on what services were offered. It was concluded that official services poorly meet the needs of these caregivers.

Key Words: dementia • Alzheimer • caregiver • services • needs

References

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 22, No. 5, 360-368 (2007)
DOI: 10.1177/1533317507305178


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J. Med. EthicsHome page
M M Raivio, A P Maki-Petaja-Leinonen, M-L Laakkonen, R S Tilvis, and K H Pitkala
The use of legal guardians and financial powers of attorney among home-dwellers with Alzheimer's disease living with their spousal caregivers
J. Med. Ethics, December 1, 2008; 34(12): 882 - 886.
[Abstract] [Full Text] [PDF]


This Article
Right arrow Abstract Freely available
Right arrow Free Full Text (Free PDF) Free
Right arrow Alert me when this article is cited
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Right arrow Email this article to a friend
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Right arrow Similar articles in PubMed
Right arrow Alert me to new issues of the journal
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Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via HighWire
Right arrow Citing Articles via Google Scholar
Right arrow Citing Articles via Scopus
Google Scholar
Right arrow Articles by Raivio, M.
Right arrow Articles by Pitkälä, K.
Right arrow Search for Related Content
PubMed
Right arrow PubMed Citation
Right arrow Articles by Raivio, M.
Right arrow Articles by Pitkälä, K.
Right arrowPubmed/NCBI databases
Medline Plus Health Information
*Alzheimer's Caregivers
*Alzheimer's Disease
*Caregivers
Social Bookmarking
 Add to CiteULike   Add to Complore   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati   Add to Twitter  
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