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American Journal of Alzheimer's Disease and Other Dementias®
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Family care of Alzheimer victims

An analysis of the adolescent experience

Diane L. Beach, MPH

Departnent of Health Science, San Diego State University, San Diego, California

The burden of caregiver stress has been well documented in the literature. While attention has been paid to caregiving spouses and adult children, few studies have examined the impact of family caregiving on adolescents. With the rise in adult child caregivers simultaneously raising children of their own, increasingly greater numbers of young adults will be involved in caring for Alzheimer's type dementia (ATD) victims. This study examined the characteristics and experiences of these young adults. Specifically, 14 adolescents aged 14-18 were interviewed and asked a series of semi-structured questions regarding theirfeelings of burden and satisfaction as they related to caregiving. Employing features of content analysis methodology, all interviews were audiorecorded and transcribed. The results merged intofive primary categories:

  • • Positive caregiving outcomes;
  • • Negative caregiving consequences;
  • • Peer group support;
  • • Teacher support; and
  • • Patient behavior management.

These results are discussed within the context of developing support group interventionsforcaregiving adolescents.

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 9, No. 1, 12-19 (1994)
DOI: 10.1177/153331759400900103
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