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American Journal of Alzheimer's Disease and Other Dementias®
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The South Carolina Alzheimer's disease patient registry: A progress report

Caroline A. Macera, PhD

Charles N. Still, MD

Debra A. Brandes, BA

Ruth K. Abramson, PhD

SC Registry for Dementing Illnesses, School of Public Health, University of South Carolina, Columbia, South Carolina

Dorothy R. Davis, BA

Department of Epidemiology & Biostatistics, School of Public Health, University of South Carolina, Columbia, South Carolina

In April1988, the American Health Assistance Foundation in Rockville, Maryland, provided major funding to establish a registry of persons in South Carolina who have been diagnosed with dementia, particularly Alzheimer's disease (AD). This funding was matched by the state Health and Human Services Finance Commission, and with supplemental funding from the Association of Schools of Public Health, and the Centers for Disease Control. The goals of the registry are as follows:

* To collect and report annual prevalence and incidence data;

* To assess and to project required health and human services resources;

* To study genetic transmission patterns;

* To provide a sampling frame for etiologic studies.

The first year experience of this project is described, with recommendations for future development.

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 6, No. 1, 35-38 (1991)
DOI: 10.1177/153331759100600108


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