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American Journal of Alzheimer's Disease and Other Dementias®
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Recommended mlinrimum data seL for state dementia registries

Rona Beth Sayetta, MD, ScD, MPH

South Carolina Registry for Dementing Illnesses, University of South of Public Healt, Columbia, South Carolina

Workshop participants

The Alzheimer's Disease State Registry Operator's Workshop developed specific recommendations for a minimum basic data set to which all public health dementia registries at the meeting agreed to subscribe. In their databases, they will carry items of information relating to the patient's identifying and sociodemographic characteristics, diagnosis, reporting facility or physician, and death (with vital statistics and autopsy data). The workshop participants also reached consensus on the tentative nature of this set of recommendations and the need for further review and possible revision after additional operating experience has been obtained.

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 3, No. 5, 19-24 (1988)
DOI: 10.1177/153331758800300506
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