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American Journal of Alzheimer's Disease and Other Dementias®
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Nutrition Education Needs and Resources for Dementia Care in the Community

Heather H. Keller, RD, PhD, FDC

Department of Family Relations and Applied Nutrition, University of Guelph, hkeller{at}uoguelph.ca

Dana Smith, BASc

Department of Family Relations and Applied Nutrition, University of Guelph

Cara Kasdorf, BSc, MAN

Department of Family Relations and Applied Nutrition, St Joseph's Health Centre, Guelph

Sherry Dupuis, PhD

Department of Recreation and Leisure Studies, University of Waterloo

Lori Schindel Martin, RN, PhD

School of Nursing, Ryerson University, Toronto Ontario, Canada

Gayle Edward, MSc

Department of Family Relations and Applied Nutrition, University of Guelph

Carly Cook, BASc

Department of Family Relations and Applied Nutrition, University of Guelph

Rebecca Genoe, MA

Department of Recreation and Leisure Studies, University of Waterloo

Nutrition problems and specificly weight loss are common in older adults with dementia living in the community. Study 1 involved interviews with 14 formal providers to identify the range of nutrition concerns they had experienced. In study 2, 74 Canadian Alzheimer Society chapters were surveyed by e-mail (23% participation rate) to determine nutrition concerns and education resources provided to clients. In all, 26 of these nutrition pamphlets or handouts were rated on content and format by 2 independent researchers using a standardized rating system. Common nutrition concerns identified in older adults with dementia living in the community include safety, weight loss, forgetting or refusing to eat, appetite, dysphagia, and unfavorable eating behaviors. Most resources provided to clients were considered low quality and did not match the nutrition concerns expressed by formal providers. Currently, there is a considerable knowledge translation gap around nutrition and dementia, and this study provides a basis for the future development of nutrition education resources.

Key Words: nutrition • education • community • dementia • caregivers

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 23, No. 1, 13-22 (2008)
DOI: 10.1177/1533317507312805
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