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Perceptions of the Process of Care Among Caregivers and Care Recipients in Dementia Care Networks

Department of Physical Therapy, University of Toronto, Toronto, Ontario, susan.jaglal{at}utoronto.ca

Rhonda Cockerill, PhD

Department of Health Policy, Management and Evaluation (RC), University of Toronto, Toronto, Ontario

Louise Lemieux-Charles, PhD

Department of Health Policy, Management and Evaluation (RC), University of Toronto, Toronto, Ontario

Larry W. Chambers, PhD

Elisabeth Bruyere Research Institute, a partnership of the University of Ottawa and the SCO Health Service, Ottawa, Ontario

Kevin Brazil, PhD

Department of Clinical Epidemiology and Biostatistics, McMaster University and St. Joseph's Health System Research Network, Hamilton, Ontario (KB)

Carole Cohen, MD

Department of Psychiatry, University of Toronto and Community Psychiatric Services for the Elderly, Sunnybrook and Women's College Health Sciences Centre, Ontario

The Dementia Care Networks Study investigated 4 community-based, not-for-profit dementia care networks in Ontario, Canada. Investigators examined whether sociodemographic and health characteristics, type of support network, and amount of service use among care recipients and caregivers (n = 267 dyads) were associated with experiences with care processes. The process-of-care constructs were: family physicians' awareness of services; experiences with health care workers, and assessment and placement activities. The findings highlighted that family physicians' understanding of dementia and their ability to work with the dyad to become aware of and accept services, was an important component in the dyad's satisfaction. If caregivers received home support and the care recipients received emotional support from their social support network, they were more likely to be satisfied with their experiences with health care workers. In summary, increased awareness and provision of services were associated with more positive perceptions of network effectiveness.

Key Words: dementia • networks • effectiveness • caregivers • care recipients

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