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American Journal of Alzheimer's Disease and Other Dementias®, Vol. 21, No. 4, 226-233 (2006)
DOI: 10.1177/1533317506290664

Information and Service Needs of Persons With Alzheimer's Disease and Their Family Caregivers Living in Rural Communities

Perry Edelman

Mather LifeWays Institute on Aging, 1603 Orrington Avenue, Suite 1800, Evanston, IL 60201; pedelman{at}matherlifeways.com

Daniel Kuhn

Bradley R. Fulton

Gregory A. Kyrouac

This study aimed to identify the information and service needs of persons with Alzheimer's disease (AD) and their family caregivers living in rural communities and to assess differences and similarities in each partner's perspective. In an outpatient clinic setting, a self-report survey was completed by 100 caregivers, while a similar survey was used to interview 100 persons with mild to moderate AD. The survey assessed respondents' interest in information or services related to 22 topics about AD and various aspects of coping with the disease. Although more caregivers than persons with AD reported interest in each topic, 8 of the top 10 topics endorsed by each group of respondents were the same. However, analysis of responses by dyads revealed substantial disagreement in terms of each partner's interest in information and services. Patient and family education, as well as referrals for services, must take into account each partner's unique perspective and needs.

Key Words: Alzheimer's disease • information and service needs • persons with dementia • family caregivers • rural communities


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