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DOI: 10.1177/153331750502000308 © 2005 SAGE Publications Instrumental help and caregivers' distress: Effects of change in informal and formal helpDepartment of Human Development, Virginia Polytechnic Institute and State University, Blacksburg, Virginia
Department of Human Development and Family Studies, The Pennsylvania State University, University Park, Pennsylvania
Department of Psychology, Kent State University, Kent, Ohio
University Center on Aging and Health, Case Western Reserve University, Cleveland, Ohio
Administration on Aging, Washington, DC Family caregivers of persons with dementia rely on a range of resources to provide care and cope with caregiving stressors. Informal (unpaid) and formal (paid) instrumental support contribute to diverse caregiver outcomes. Previous research of caregiver support has focused on subjective measures of help or has compared caregivers receiving formal services to those who do not. We focused instead on the effects of change in the amount of formal and informal instrumental assistance on caregivers' distress. We expected that greater gains in assistance would be associated with greater reduction of caregivers' distress. Increases in formal but not informal levels of assistance were associated with improvement in each measure of distress. Additional measures may be needed to fully understand the effects of informal and formal assistance.
Key Words: dementia caregiving informal help formal help caregiver distress
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