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Exploring the meaning of everyday life, for those suffering from dementia

Blekinge Institute for Research and Development in Social Work, Psychiatry and Primary Care, Karlshamn, Sweden.

Ingalill R. Hallberg, PhD, RNT

Department of Nursing, Unit for Caring Sciences, Lund University, Lund, Sweden.

Living with dementia means struggling to preserve a sense of self, to retain (and reevaluate) one's values in a new situation, and to search for a new way of life. This study explored the meaning of everyday life as expressed by 11 people suffering from dementia. Data were collected through interviews with people in the early stage of a diagnosed dementia disease. The findings indicate that many people with dementia feel shame, sorrow, and sadness when their life with the disease begins but also indicate prospects of a more manageable life. Since the reaction and adjustment to dementia differs from person to person, professional caregivers need to use a casespecific approach in the provision of care.

Key Words: dementia • caregiver strategies • empirical studies

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 18, No. 6, 359-365 (2003)
DOI: 10.1177/153331750301800605


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