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The stress of dementia: View from the inside

Gerontological Nursing; Center on Aging, School of Nursing, University of Texas Health Science Center, Houston, Texas.

Wendy Duggleby, DSN, RN

School of Nursing, University of Texas, Arlington, Texas.

Kenneth W. Hepburn, PhD

Department of Family Practice and Community Health, University of Minnesota Medical School, Minneapolis, Minnesota.

This descriptive exploratory study used thematic analysis to interpret short videotaped speech samples produced by persons with dementia in response to the question, "How have things been going for you lately?" The researchers were able to identify themes in 50 of the 56 interviews with men and women with Mini-Mental State Examination (MMSE) scores that ranged from five to 28. The major themes across all MMSE levels were losses, feelings about losses, and attempts to manage losses. The individuals’ choice of themes as well as their verbal and nonverbal expressions suggested that they were experiencing a significant amount of stress, especially related to their relationships with family and friends.

Key Words: Alzheimer's disease • dementia • stress • loss • family relationships

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 17, No. 5, 303-312 (2002)
DOI: 10.1177/153331750201700511


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