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American Journal of Alzheimer's Disease and Other Dementias®
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Article

The Role of Grief in Dementia Caregiving

Brigg B. Noyes, PhD*, Robert D. Hill, PhD, ABPP, Bret L. Hicken, PhD, MSPH, Marilyn Luptak, PhD, MSW, Randall Rupper, MD, Nancy K. Dailey, MSN, RN-BC, and Byron D. Bair, MD

* To whom correspondence should be addressed. E-mail: briggb{at}alum.dartmouth.org.


   Abstract

The literature examining issues of caregiver stress, burden, or depression has focused on the stress-process model of caregiving, which posits that there are characteristics inherent in dementia and in the course of caregiving for a person with dementia that can cause stress in the caregiver’s life. A more recent literature has emerged that argues that issues of loss and grief play a significant role in a caregiver’s ability to cope with the stressors of caregiving. This article reviews the caregiver stress and grief literatures, and proposes a conceptual model of dementia caregiving that outlines pathways of stress and grief in dementia caregiving. Issues specific to caregiver grief are proposed for future research and intervention design.

First published on April 22, 2009
American Journal of Alzheimer's Disease and Other Dementias® 2009, doi:10.1177/1533317509333902


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