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Caregiver burden in Alzheimer's disease: Case studies

Alzheimer's Disease Center, The University of Texas Southwestern Medical Center at Dallas, Dallas, Texas

Carolyn Trimmer, MS

Anesthesiology and Pain Management Department, University of Texas, Southwestern Medical Center, Dallas, Texas

Doris Svetlik, BS, RN, MS

Clinical Core of The Alzheimer's Disease Center, University of Texas, Southwestern Medical Center, Dallas, Texas

Myron F. Weiner, MD

University of Texas Southwestern Medical Center, Dallas, Texas; Clinical Core of the Alzheimer's Disease Center, Dallas, Texas

A series of individual caregivers were studied in a program for reducing caregiver burden. Using a modified caregiver burden inventory for assessment, an educational program and a needs-based intervention algorithm to guide intervention of caregivers, attempts were made to mitigate caregiver burden. A study of individual cases suggested that primary burden for caregivers included time spent in caring for loved ones and missing out on phase-of-life-appropriate activities. It was our impression that caregiver burden did not represent an appropriate outcome measure in this situation, and that the most desired outcome was the openness of individuals to assistance when and where they were able to accept it.

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