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American Journal of Alzheimer's Disease and Other Dementias®
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A content analysis of an Alzheimer family caregivers virtual focus group

Diane Feeney Mahoney, PhD, RN

Research and Training Institute, Hebrew Rehabilitation Center for Aged, Boston, Massachusetts

A content analysis of the messages posted by family caregivers on an Alzheimer's disease (AD) electronic network wan, undertaken for a 12-month period. The purpose was to let 17 about their caregiving issues and experience. Data frovr 566 subject postings were categorized into topics that varied by stage of caregiving. New caregivers sought in ormation about verifying the diagnosis of AD and anticipatory planning, middle stage caregivers sought specific problem solving assistance, and later stage caregivers struggled with decisions surrounding whether to continue or release caregiving responsibilities. A conceptual model of caregiving transitions emerged from the data. Key themes were normalizing, managing, surviving, with "being there " and vigilance central concepts. Fiidings suggest that virtual focus groups offer access to geographically diverse caregivers and compliment traditional methods

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 13, No. 6, 309-316 (1998)
DOI: 10.1177/153331759801300606
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