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American Journal of Alzheimer's Disease and Other Dementias®
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Attribution of emotion in advanced Alzheimer's disease: Family and caregiver perspectives

Ruth M. Tappen, EdD, RN, FAAN

Florida Atlantic University, Boca Raton, Florida

Christine Williams, DNSc, RN, CS

University of Miami, School of Nursing, Coral Gables, Florida; Geriatric Research and Education Center, Department of Veteran's Aftairs, Miami, Florida

This qualitative study explored family and caregiver perspectives on the expression of emotion by individuals in the middle and late stages of Alzheimer's disease (AD). Indepth interviews were conducted with family members and facility staff Respondents readily ascribed expression of a wide range of emotions to individuals in the advanced stages of AD. More negative than positive emotions were identified. Caregivers attributed much of the negative emotion to individual response to the difficulties imposed by the disease. Differences by stage of the disease and sudden shifts in mood were also described, including a difficult period coinciding with recognition of increasing deficits and their consequences in the middle stages.

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 13, No. 5, 257-264 (1998)
DOI: 10.1177/153331759801300506
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