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American Journal of Alzheimer's Disease and Other Dementias®
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Perceptions of family caregivers of persons with Alzheimer's disease: Communication with physicians

Analee E. Beisecker, PhD

Department of Preventive Medicine, Alzheimer's Disease Center; Center of Aging, University of Kansas Medical Center; Kansas City, Kansas.

Susan Kasal Chrisman, PhD, RN

Research Hospital, Kansas City, Missouri.

Linda J. Wright, MPA, RN

Alzheimer's Disease Center, Center on Aging, University of Kansas Medical Center, Kansas City, Kansas.

Telephone interviews with 104 family caregivers of Alzheimer's disease patients revealed that physicians progressively communicated more with caregivers and less with patients. We identified four levels of physician interaction with patients and five levels of interaction with caregivers. Caregivers wanted more information from physicians about expected progress of the disease, financial/legal issues, available services, research projects and their own personal needs. Half the caregivers had discussed advance directives with physicians, three-quarters of them had legal decision making powers for the patient, and one-third of the patients had living wills.

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 12, No. 2, 73-83 (1997)
DOI: 10.1177/153331759701200205
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 DementiaHome page
P. A. Clark, S. S. Tucke, and C. J. Whitlatch
Consistency of information from persons with dementia: An analysis of differences by question type
Dementia, August 1, 2008; 7(3): 341 - 358.
[Abstract] [PDF]


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