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American Journal of Alzheimer's Disease and Other Dementias®
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Training former dementia caregivers to provide peer education and social support

Patricia A. Sharpe, PhD, MPH

School of Public Health, University of South Carolina, Columbia, South Carolina.

Marilynn E. Koerber, MPH, RN, C

Caroline A. Macera, PhD

South Carolina Statewide Alzheimer's Disease Registry; School of Public Health, University of South Carolina, Columbia, South Carolina.

Gerald L. Euster, DSW

College of Social Work, University of South Carolina, Columbia, South Carolina.

The purpose of this pilot study was to develop and evaluate a training program for volunteer peer educators of Alzheimer's disease caregivers. Curriculum development included a literature review and a focus group needs assessment with 25 caregivers. Eight former caregivers participated in pilot testing of a 10-unit, 30-hour training program to develop knowledge regarding Alzheimer's disease, caregiving, services, resources, and skills for effective communication. Qualitative and quantitative evaluation revealed gains in skills and knowledge, a high level of participant satisfaction, and suggestions for future training. This study suggests that former caregivers who are no longer actively involved in caregiving can acquire new knowledge and skills as peer educators and work with professionals to provide education, support and referral.

American Journal of Alzheimer's Disease and Other Dementias®, Vol. 11, No. 4, 16-24 (1996)
DOI: 10.1177/153331759601100403


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